A New Book By an Autistic Kid's Mother

Yediot Aharonot's "7 Days" section has an interesting interview this weekend with Galit Distel Etebaryan, who wrote a novel based on her experiences as the mother of an autistic kid. Unfortunately, I couldn't find it on-line in either Hebrew or English, but here's a review of her book from Ha'aretz in Hebrew and in English.

In the interview, Etebaryan calls her son "formerly autistic", although he still has some problems. I'd say this is misleading. He's still autistic, but very high functioning.

It's interesting that the European psychiatrist who told her that her son is autistic blamed her for his condition. Apparently not everybody has parted with the notion of refrigerator mothers. I'd like to hope that had her son been diagnosed in Israel, that wouldn't have happened (she was in Europe - Greece in the novel, I don't know if it was Greece in real life, too - because her husband was working there at the time).

She also says honestly that she isn't glad she has a child with special needs. She says that hearing other parents saying their special kids made them better people makes her laugh. I can understand her feelings. Most people would rather have normal children, though I do think having children with special needs makes their parents (and other relatives) more sensitive and more understanding.

One last observation: the book review says the child in the novel never spoke a word before he was diagnosed, while Etebaryan says in her interview that her son spoke fluently until he started regressing at the age of two, although she also describes him as rejecting her and avoiding physical contact as a little baby, which would suggest he was autistic from the beginning. I find this interesting, because I always wondered if kids really did regress, or maybe the parents were in denial. Anyway, it's perfectly possible that there are different forms of autism, some with regression, some without.

Is Oskar Schell Autistic?

After reading Jonathan Safran Foer's "Extremely Loud & Incredibly Close" I went to Wikipedia's entry for the book. The 9-year-old narrator Oskar is described there as "possibly autistic (at the very least he shows some signs of Asperger's Syndrome)". What the? While I read the novel I never thought he might be autistic. He's so not autistic!

So I Googled the novel's title and Oskar along with the word "autistic" and found many book reviews and references where he received an autism or Asperger's Syndrome diagnosis from several commentators. Again, what the? Oskar is often compared to Mark Haddon's autistic protagonist in "The Curious Incident of the Dog in the Night-time", a book I haven't read. But for the purpose of "diagnosing" Oskar that doesn't matter. I may not be familiar with the famous fictional autistic boy, but I do know a real autistic kid from, well, incredibly close (and when he was a little baby he was also extremely loud).

First of all, not every child who is extremely intelligent and takes an interest in sciences is an autistic savant. We neurotypicals have our fair share of geniuses. Secondly, Oskar doesn't show any anxiety about meeting new people, going to places he has never seen before and entering into new situations. In fact, he is very friendly to strangers (maybe even too much).

Some people cite Oskar's rules as evidence of his autism. He doesn't use public transportation, elevators and bridges. Considering the fact that his father was killed in a terrorist attack that is a perfectly normal reaction. Besides, Oskar is willing to break the rules when he must. There is one eccentricity - Oskar's insistence on wearing only white clothes - that I cannot explain, but it in itself is not enough to make a case for an autism spectrum disorder.

People also say Oskar has difficulty expressing his feelings. After the trauma he has gone through, wouldn't most normal children, or even adults, have trouble expressing themselves?

I haven't seen anyone write about Oskar's grandfather being autistic - but if anyone in this novel has the condition, it is Grandpa. He doesn't speak. He expresses himself in writing. If he's autistic and autism is genetic, maybe it makes more sense that Oskar is indeed autistic. But even this old "empty Schell" of a man is not autistic. He loses the ability to speak when he is in his 20's or early 30's, and though it is suggested it is a psychological problem and not a physical one, I have a hard time believing an autistic adult would regress at that age. The guy experienced the horrors of the Dresden bombings during World War II. That's enough of a trauma to render anyone speechless (though he lost his speech gradually).

Anyway, do you agree? Have I missed any points? Do you think Jonathan Safran Foer meant for Oskar to be autistic? Your comments are welcome.

Extremely Loud & Incredibly Close

I just finished reading "Extremely Loud & Incredibly Close" by Jonathan Safran Foer. I found it to be extremely good and refreshing. Since it tells the story of a boy who lost his father on 9/11 I didn't expect it to be such a funny book. Oskar Schell, the narrator, reminded me of Holden Caulfield from "The Catcher in the Rye", and I'm quite sure Safran Foer intentionally imitated J. D. Salinger. The only part I didn't like about the book was the ending of the grandparents' storyline, which seemed kind of pointless. I won't elaborate so as not to spoil the ending for those who haven't read it yet.

Just a few days ago I wrote that I was afraid I might have lost the ability to concentrate on a novel. "Extremely Loud" has shown me that the problem isn't with me - it's the books. I finished "Extremely Loud" in 3 days because I found it fascinating. I guess the books that took me months to read are just not my cup of tea. The next novel I intend to read is Safran Foer's literary debut, "Everything Is Illuminated".

My next post: "Extremely Loud & Incredibly Close" and Autism